The Importance of Health Information Seeking Among Diabetes Patients in Malaysia: A Preliminary Observation
Keywords:
Health information seeking behaviour, diabetes, role, theory, health literacy
Abstract
The sharing of health information by educating patients and encouraging them to seek relevant information is one of the main strategies in disease prevention. By evaluating patient's information seeking behaviour and identifying the health information seeking trends, it is possible to establish effective techniques to deliver the necessary information to the patients to enhance their self-management skills. It is critical to keep people informed about effective preventative techniques that can control their disease progression. Thus, this study aimed to highlight the role and importance of health information seeking behaviour among people with diabetes in Malaysia.
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References
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Ahadzadeh, A. S. (2017). Online Health Information Seeking among Malaysian Women: Technology Acceptance Model Perspective. SEARCH: The Journal of the South East Asia Research Centre for Communications and Humanities, 9(1), 47-70.
Ahmad, B., Ramadas, A., Kia Fatt, Q., & Zain, A. Z. M. (2014). A pilot study: the development of a culturally tailored Malaysian Diabetes Education Module (MY-DEMO) based on the Health Belief Model. BMC Endocrine Disorders, 14(1). https://doi.org/10.1186/1472-6823-14-31
Alwi, S.S.E. & Murad, M.A.A (2018). 'Online Information Seeking: A Review of the Literature in the Health Domain'. World Academy of Science, Engineering and Technology, Open Science Index 144, International Journal of Computer and Information Engineering, 12(12), 1025 - 1031.
Azreena E, Suriani I, Juni MH & Fuziah P. (2016). Factors associated with health literacy among Type 2 Diabetes Mellitus patients attending a government health clinic, 2016. Int J Public Heal Clin Sci. ;3(6): 50-64.
Biernatzki, L., Kuske, S., Genz, J., Ritschel, M., Stephan, A., Bächle, C., & Icks, A. (2018). Information needs in people with diabetes mellitus: a systematic review. Open Access Bio Med Central (BMC), 7(1), 27https://doi.org/10.1186/s13643-018-0690-0
Diviani, N., van den Putte, B., Giani, S., & van Weert, J. C. (2015). Low health literacy and evaluation of online health information: A systematic review of the literature. Journal of Medical Internet Research, 17(5), e112. https://doi.org/10.2196/jmir.4018
Freimuth, V.S., Stein, J.A., & Kean, T.J. (1989). Searching for health information: The cancer information service model. Philadelphia: University of Pennsylvania Press.
Ganapathy, S. & Jawahir, S. & Jailani, A. & Bakar, S. (2020). National Health and Morbidity Survey 2019: Technical Report - Volume II (Healthcare Demand). https://doi.org/10.13140/RG.2.2.16717.05603
Hamzah, M. R., Mohammad, E.M.W., Abdullah, M. Y., & Ayub, S. H. (2015). Scenario on health information seeking in Malaysia: A Systematic review. Journal of Human Development and Communication,4, 7-20.
Hashimoto, H., & Fukuhara, S. (2004). The influence of locus of control on preferences for information and decision making. Patient Education and Counseling, 55(2), 236-240.
International Diabetes Federation (IDF), Diabetes Atlas 9th edition (2019). Brussels: Belgium. Available at: https://www.diabetesatlas.com
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Ishikawa H. & Kiuchi T. (2010). Health literacy and health communication. BioPsychoSocial Medicine 4:18.
Jacobs, W., Amuta, A. O., & Jeon, K. C. (2017). “Health information seeking in the digital age: An analysis of health information seeking behaviour among US adults. Cogent Social Sciences, 3(1), 1-11.
Johnson, J. D. (1997). Cancer-related information-seeking. Cresskill, NJ: Hampton.
Kalantzi, S., Kostagiolas, P., Kechagias, G., Niakas, D., & Makrilakis, K. (2015). Information seeking behaviour of patients with diabetes mellitus: a cross-sectional study in an outpatient clinic of a university-affiliated hospital in Athens, Greece. BMC Research Notes, 8(1), 48. https://doi.org/10.1186/s13104-015-1005-3
Kueh, Y.C., & Kuan, G. (2018). Psychometric Properties of Malay Version of Summary of Diabetes Self-care activities measures among the Malay adults with Type 2 Diabetes Mellitus in Kelantan, Malaysia. Austin Diabetes Res, 3(1), 1017.
Lagoe, C., & Atkin, D. (2015). Health anxiety in the digital age: An exploration of psychological determinants of online health information seeking. Computers in Human Behaviour, 52, 484-49. https://dx.doi.org/10.1016/j.chb.2015.06.003
Lambert, S. D., & Loiselle, C. G. (2007). Health Information—Seeking Behaviour. Qualitative Health Research, 17(8), 1006–1019. https://doi.org/10.1177/1049732307305199
Lenz, E. (1984). Information seeking: A component of client decisions and health behaviour. ANS, 6(3), 59-71.
Lintonen, T. P., Konu, A. I., & Seedhouse, D. (2008). Information technology in health promotion. Health Education Research, 23(3), 560–566. https://doi.org/10.1093/her/cym001
Longo, D.R. (2005). Understanding health information, communication, and information-seeking of patients and consumers: A comprehensive and integrated model. Health Expectations, 8, 189-194.
Longo, D. R., Schubert, S. L., Wright, B. A., LeMaster, J., Williams, C. D., & Clore, J. N. (2010). Health information seeking, receipt, and use in diabetes self-management. The Annals of Family Medicine, 8(4), 334-340.
Maon, S. N., Hassan, N. M., & Seman, S. A. A. (2017). Online health information seeking behaviour pattern. Advanced Science Letters, 23(11), 10582–10585. https://doi.org/10.1166/asl.2017.10107
Mathialagan, A. G., JA, J. A., Dinesh, M., Azra, N., Selvaganapathi, G., Harikrishnan, T., & Vikneswaran, S. (2018). Patient attitudes and health information features as predictors of health promotion in Malaysia. Journal of Advanced Pharmacy Education & Research| Apr-Jun, 8(2).
Milewski, J., & Chen, Y. (2010). Barriers of obtaining health information among diabetes patients. Studies in health technology and informatics, 160(Pt 1), 18–22.
National Diabetes Registry Report 2009-2012, Chapter 2 Malaysian Diabetes Profiling.
National Health and Morbidity Survey 2015 (NHMS 2015). Vol. II: Non-Communicable Diseases, Risk Factors & Other Health Problems; 2015.
National Health and Morbidity Survey (NHMS) 2019 (NMRR-18-3085-44207). Non-communicable diseases, healthcare demand, and health literacy: Key Findings.
Niederdeppe, J., Hornik, R. C., Kelly, B. J., Frosch, D. L., Romantan, A., Stevens, R. S., & Schwartz, J. S. (2007). Examining the dimensions of cancer-related information seeking and scanning behaviour. Health communication, 22(2), 153-167.
Qusaier, R.A., Al-Tqiqi, Y.E., Al-Ahmadi, H.S., Alqarni, A., & Felemban, A.M. (2017). Information Seeking Behaviour among Diabetic Patients Attending Primary Healthcare in Western Saudi Arabia: A Cross-Sectional Two-Center Study.
Robertson, J., Akhtar, S., Petrie, J., Brown, F., Jones, G., Perry, C., & Paterson, K. (2005). How do people with diabetes access information? Practical Diabetes International, 22(6), 207–210. https://doi.org/10.1002/pdi.818
Shaw, S.J., Huebner, C., Armin, J., Orzech, K. & Vivian, J. (2009). The role of culture in health literacy and chronic disease screening and management. J. Immigrant Minority Health 11(6): 460-467.
Shi, H.-J.,Nakamura, K., & Takano, T. (2004). Health values and health information-seeking in relation to positive change of health practice among middle-age urban men. Preventive Medicine, 39, 1164-1171.
Vahdat, S., Hamzehgardeshi, L., Hessam, S., & Hamzehgardeshi, Z. (2014). Patient involvement in health care decision making: a review. Iranian Red Crescent medical journal, 16(1), e12454. https://doi.org/10.5812/ircmj.12454
Wilson, T. D. (1997). Information behaviour: An interdisciplinary perspective. Information Processing & Management, 33(4), 551–572. https://doi.org/10.1016/s0306-4573(97)00028-9
World Health Organization (2017). Shanghai declaration on promoting health in the 2030 agenda for sustainable development.
Yu, F. Q., Murugiah, M. K., Khan, A. H., & Mehmood, T. (2015). Meta-synthesis exploring barriers to health seeking behaviour among Malaysian breast cancer patients. Asian Pac J cancer prev, 16(1), 145-152.
Zhang, X., Foo, S., Majid, S., Chang, Y.-K., Dumaual, H. T. J., & Suri, V. R. (2020). Self-care and health- information seeking behaviours in diabetic patients in Singapore. Journal of Health Communication, 35(8), 994-1003. https://doi.org/10.1080/10410236.2019.1606134
Abdullah, A., Liew, S. M., Salim, H., Ng, C. J., & Chinna, K. (2019). Prevalence of limited health literacy among patients with type 2 diabetes mellitus: A systematic review. PLOS One, 14(5), e0216402. https://doi.org/10.1371/journal.pone.0216402
Abdulrahim Qusaier, R., Al-Tqiqi, Y. E., Al-Ahmadi, S., Al-Qarni, A. M., & Felemban, A. M. (2017). Information Seeking Behaviour among Diabetic Patients Attending Primary Healthcare in Western Saudi Arabia: A Cross-Sectional Two-Center Study. Original Research Article, 41(1), 41-50. https://doi.org/10.21276/ijmrp.2017.3.1.008
Ahadzadeh, A. S. (2017). Online Health Information Seeking among Malaysian Women: Technology Acceptance Model Perspective. SEARCH: The Journal of the South East Asia Research Centre for Communications and Humanities, 9(1), 47-70.
Ahmad, B., Ramadas, A., Kia Fatt, Q., & Zain, A. Z. M. (2014). A pilot study: the development of a culturally tailored Malaysian Diabetes Education Module (MY-DEMO) based on the Health Belief Model. BMC Endocrine Disorders, 14(1). https://doi.org/10.1186/1472-6823-14-31
Alwi, S.S.E. & Murad, M.A.A (2018). 'Online Information Seeking: A Review of the Literature in the Health Domain'. World Academy of Science, Engineering and Technology, Open Science Index 144, International Journal of Computer and Information Engineering, 12(12), 1025 - 1031.
Azreena E, Suriani I, Juni MH & Fuziah P. (2016). Factors associated with health literacy among Type 2 Diabetes Mellitus patients attending a government health clinic, 2016. Int J Public Heal Clin Sci. ;3(6): 50-64.
Biernatzki, L., Kuske, S., Genz, J., Ritschel, M., Stephan, A., Bächle, C., & Icks, A. (2018). Information needs in people with diabetes mellitus: a systematic review. Open Access Bio Med Central (BMC), 7(1), 27https://doi.org/10.1186/s13643-018-0690-0
Diviani, N., van den Putte, B., Giani, S., & van Weert, J. C. (2015). Low health literacy and evaluation of online health information: A systematic review of the literature. Journal of Medical Internet Research, 17(5), e112. https://doi.org/10.2196/jmir.4018
Freimuth, V.S., Stein, J.A., & Kean, T.J. (1989). Searching for health information: The cancer information service model. Philadelphia: University of Pennsylvania Press.
Ganapathy, S. & Jawahir, S. & Jailani, A. & Bakar, S. (2020). National Health and Morbidity Survey 2019: Technical Report - Volume II (Healthcare Demand). https://doi.org/10.13140/RG.2.2.16717.05603
Hamzah, M. R., Mohammad, E.M.W., Abdullah, M. Y., & Ayub, S. H. (2015). Scenario on health information seeking in Malaysia: A Systematic review. Journal of Human Development and Communication,4, 7-20.
Hashimoto, H., & Fukuhara, S. (2004). The influence of locus of control on preferences for information and decision making. Patient Education and Counseling, 55(2), 236-240.
International Diabetes Federation (IDF), Diabetes Atlas 9th edition (2019). Brussels: Belgium. Available at: https://www.diabetesatlas.com
International Diabetes Federation (IDF) (2021, October 23). Available at https://www.diabetesatlas.org/en/sections/demographic-and-geographic-outline.html (Accessed on 23 October 2021)
International Diabetes Federation (IDF) (2021, October 23). Available at idf.org/our-network/regions-members/western-pacific/members/108-malaysia.html (Accessed on 23 October 2021)
Ishikawa H. & Kiuchi T. (2010). Health literacy and health communication. BioPsychoSocial Medicine 4:18.
Jacobs, W., Amuta, A. O., & Jeon, K. C. (2017). “Health information seeking in the digital age: An analysis of health information seeking behaviour among US adults. Cogent Social Sciences, 3(1), 1-11.
Johnson, J. D. (1997). Cancer-related information-seeking. Cresskill, NJ: Hampton.
Kalantzi, S., Kostagiolas, P., Kechagias, G., Niakas, D., & Makrilakis, K. (2015). Information seeking behaviour of patients with diabetes mellitus: a cross-sectional study in an outpatient clinic of a university-affiliated hospital in Athens, Greece. BMC Research Notes, 8(1), 48. https://doi.org/10.1186/s13104-015-1005-3
Kueh, Y.C., & Kuan, G. (2018). Psychometric Properties of Malay Version of Summary of Diabetes Self-care activities measures among the Malay adults with Type 2 Diabetes Mellitus in Kelantan, Malaysia. Austin Diabetes Res, 3(1), 1017.
Lagoe, C., & Atkin, D. (2015). Health anxiety in the digital age: An exploration of psychological determinants of online health information seeking. Computers in Human Behaviour, 52, 484-49. https://dx.doi.org/10.1016/j.chb.2015.06.003
Lambert, S. D., & Loiselle, C. G. (2007). Health Information—Seeking Behaviour. Qualitative Health Research, 17(8), 1006–1019. https://doi.org/10.1177/1049732307305199
Lenz, E. (1984). Information seeking: A component of client decisions and health behaviour. ANS, 6(3), 59-71.
Lintonen, T. P., Konu, A. I., & Seedhouse, D. (2008). Information technology in health promotion. Health Education Research, 23(3), 560–566. https://doi.org/10.1093/her/cym001
Longo, D.R. (2005). Understanding health information, communication, and information-seeking of patients and consumers: A comprehensive and integrated model. Health Expectations, 8, 189-194.
Longo, D. R., Schubert, S. L., Wright, B. A., LeMaster, J., Williams, C. D., & Clore, J. N. (2010). Health information seeking, receipt, and use in diabetes self-management. The Annals of Family Medicine, 8(4), 334-340.
Maon, S. N., Hassan, N. M., & Seman, S. A. A. (2017). Online health information seeking behaviour pattern. Advanced Science Letters, 23(11), 10582–10585. https://doi.org/10.1166/asl.2017.10107
Mathialagan, A. G., JA, J. A., Dinesh, M., Azra, N., Selvaganapathi, G., Harikrishnan, T., & Vikneswaran, S. (2018). Patient attitudes and health information features as predictors of health promotion in Malaysia. Journal of Advanced Pharmacy Education & Research| Apr-Jun, 8(2).
Milewski, J., & Chen, Y. (2010). Barriers of obtaining health information among diabetes patients. Studies in health technology and informatics, 160(Pt 1), 18–22.
National Diabetes Registry Report 2009-2012, Chapter 2 Malaysian Diabetes Profiling.
National Health and Morbidity Survey 2015 (NHMS 2015). Vol. II: Non-Communicable Diseases, Risk Factors & Other Health Problems; 2015.
National Health and Morbidity Survey (NHMS) 2019 (NMRR-18-3085-44207). Non-communicable diseases, healthcare demand, and health literacy: Key Findings.
Niederdeppe, J., Hornik, R. C., Kelly, B. J., Frosch, D. L., Romantan, A., Stevens, R. S., & Schwartz, J. S. (2007). Examining the dimensions of cancer-related information seeking and scanning behaviour. Health communication, 22(2), 153-167.
Qusaier, R.A., Al-Tqiqi, Y.E., Al-Ahmadi, H.S., Alqarni, A., & Felemban, A.M. (2017). Information Seeking Behaviour among Diabetic Patients Attending Primary Healthcare in Western Saudi Arabia: A Cross-Sectional Two-Center Study.
Robertson, J., Akhtar, S., Petrie, J., Brown, F., Jones, G., Perry, C., & Paterson, K. (2005). How do people with diabetes access information? Practical Diabetes International, 22(6), 207–210. https://doi.org/10.1002/pdi.818
Shaw, S.J., Huebner, C., Armin, J., Orzech, K. & Vivian, J. (2009). The role of culture in health literacy and chronic disease screening and management. J. Immigrant Minority Health 11(6): 460-467.
Shi, H.-J.,Nakamura, K., & Takano, T. (2004). Health values and health information-seeking in relation to positive change of health practice among middle-age urban men. Preventive Medicine, 39, 1164-1171.
Vahdat, S., Hamzehgardeshi, L., Hessam, S., & Hamzehgardeshi, Z. (2014). Patient involvement in health care decision making: a review. Iranian Red Crescent medical journal, 16(1), e12454. https://doi.org/10.5812/ircmj.12454
Wilson, T. D. (1997). Information behaviour: An interdisciplinary perspective. Information Processing & Management, 33(4), 551–572. https://doi.org/10.1016/s0306-4573(97)00028-9
World Health Organization (2017). Shanghai declaration on promoting health in the 2030 agenda for sustainable development.
Yu, F. Q., Murugiah, M. K., Khan, A. H., & Mehmood, T. (2015). Meta-synthesis exploring barriers to health seeking behaviour among Malaysian breast cancer patients. Asian Pac J cancer prev, 16(1), 145-152.
Zhang, X., Foo, S., Majid, S., Chang, Y.-K., Dumaual, H. T. J., & Suri, V. R. (2020). Self-care and health- information seeking behaviours in diabetic patients in Singapore. Journal of Health Communication, 35(8), 994-1003. https://doi.org/10.1080/10410236.2019.1606134
